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  Kathleen Sebelius won’t waive regulation for girl with five weeks to live: ‘Someone lives and someone dies’
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Last EditedScott³  Jun 05, 2013 01:54pm
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AuthorJoel Gehrke
News DateTuesday, June 4, 2013 07:00:00 PM UTC0:0
Description"Health and Human Services Secretary Kathleen Sebelius rebuffed an appeal from Rep. Lou Barletta on behalf of a girl who needs a lung transplant but can’t get one because of a federal regulation that prevents her from qualifying for a transplant.

“Please, suspend the rules until we look at this policy,” Barletta, a Pennsylvania Republican, asked Sebelius during a House hearing Tuesday on behalf of Sarah Murnaghan, a 10-year-old girl who needs a lung transplant. She can’t qualify for an adult lung transplant until the age of 12, according to federal regulations, but Sebelius has the authority to waive that rule on her behalf. The pediatric lungs for which she currently qualifies aren’t available.

“I would suggest, sir, that, again, this is an incredibly agonizing situation where someone lives and someone dies,” Sebelius replied. “The medical evidence and the transplant doctors who are making the rule — and have had the rule in place since 2005 making a delineation between pediatric and adult lungs, because lungs are different that other organs — that it’s based on the survivability [chances].”
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Date Category Headline Article Contributor
Jun 12, 2013 10:00am News Girl who took on donor rules gets lung transplant  Article John 
Jun 05, 2013 02:40pm Opinion Kathleen Sibelius [sic] Is A One-Woman Death Panel  Article Scott³ 
Jun 05, 2013 02:00pm News Judge Rules Sarah Murnaghan Can Be Put on Adult Donor List  Article Scott³